Chiari & Syringomyelia News  

A  bi-monthly, on-line publication delivering the latest research updates, news, and information.

Current Issue:
May, 2008
Volume 6, Number 3

[Printable Version]

Newsletter Archives (Over 300 Articles):
  By Date
  Research Updates
  Personal Stories
  Special Topics
  Interviews

Featured Articles:

Wide Range Of Chiari Malformation Symptoms

Chiari Malformation & Sleep Apnea

Surgical Technique Minimizes Trauma Of Chiari Surgery

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What Is Chiari & Syringomyelia News?

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Chiari Malformation (Arnold-Chiari)  is a serious neurological disorder where the bottom part of the brain, the cerebellum, descends out of the skull and crowds the spinal cord, putting pressure on both the brain and spine and causing many symptoms.             

!!!Upcoming Events!!!

Conquer Chiari Walk Across America, September 20th, 2008
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Chiari Professional Research Conference, November 6&7, 2008
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A Quick Overview                       Frequently Asked Questions

Research Articles                         Patient Literature & Handouts         

Conquer Chiari Walk Across America:  Sept. 20th, 2008

Meet Other Chiari People In The Meeting Place

Contents Under Pressure:  One Man's Amazing Chiari Journey  

Organize A Fundraiser

Research Symposium 2007         

More Education Materials       
 

Quick Facts About Chiari Malformation:

• Affects more than 300,000 people in the US; 30% of children born with spina bifida are also born with a Chiari Malformation.

• Causes a wide ranging, diverse set of symptoms. Research has shown that 95% of patients experience at least 5 symptoms.

• Diagnosed using combination of MRI, neurological exam, physician’s judgment, and other tests; patients often
  go 5 or more years before being properly diagnosed.

• A study of over 300 Chiari Malformation patients found
  that 57% had at one time been told by a doctor they were suffering from a mental or emotional problem.

• Many patients undergo serious brain surgery in an attempt to stop symptoms from progressing.

• Research has shown that surgery can improve symptoms for about 80% of patients, but fails about 20% of the time.

• Chiari can place a tremendous physical, mental, emotional, and economic strain on patients and their families.

The C&S Patient Education Foundation, known informally as Conquer Chiari, is a 501(c)(3) public charity dedicated to improving the experiences and outcomes of Chiari and syringomyelia patients through education, awareness, and research.  The Conquer Chiari website is the single most comprehensive source of information available about Chiari Malformation, syringomyelia, and related topics.  Tax deductible donations can be made here.   Tax ID#:  20-0904691.

CONTACT US:  director@conquerchiari.org, 724-940-0116

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